I’ve mentioned this book before, but if you don’t have CCSVI as the Cause of Multiple Sclerosis: The Science Behind the Controversial Theory by Marie Rhodes and Elaine Moore, you should click on the link and get it RIGHT AWAY!
It is a shame that CCSVI is not given more attention and credence by the medical and health insurance industries. Far too many MS patients are not receiving this treatment. Again, it is not a cure, but the following are my arguments why it should be a routine procedure for EVERY MS patient in the world.
1. It is not a medication with risky side effects. The treatment is not a medication, but rather angioplasty, a medical procedure, which has been performed hundreds of thousands of times with virtually no side effects. Contrast that to MS and other medications prescribed to patients that carry unbelievable and sometimes unforeseeable side effects (see next argument). Tysabri has caused the trigger of PML (progressive multifocal leukoencephalopathy), a virus that causes brain damage and can lead to death, a fact admitted even by Tysabri’s manufacturer Biogen.
2. Most (if not all) of the MS medications have proven ineffective or at a minimum not cost-effective. There are studies that show that there is no difference in progression of the disease between people who took MS medications and those who did not. There is also a recent study that questioned the cost-effectiveness of these medications. The study concluded that “adding an injectable disease-modifying drug to the treatment of MS patients roughly doubles the cost of care, while only providing small population-level improvements in survival and quality of life.” Translation: most MS meds don’t work on most people.
3. Anecdotal evidence indicates that there is an improvement in the symptoms of MS patients. The big gripe by the medical and insurance communities is that there are insufficient studies about the CCSVI angioplasty procedure, yet they are the same ones blocking or refusing to participate in such studies. Hmmmm. . . makes you think, huh? Studies are ongoing, however, and until they are completed, can’t we rely on some very good anecdotal evidence? If not, why not? The amazing thing is that the medical community says the anecdotal evidence is caused by the “placebo effect.” Huh? First, a placebo is when you are not given any treatment or medication – typically you are given a sugar pill compared to the test medication. The CCSVI procedure isn’t a medication (as said above) AND it is actually performed on the patient (it’s not like they are faking an angioplasty). Thus, the “placebo effect” response is not only scientifically inaccurate, it is intentionally deceptive.
Frankly, it gets me angry that purported scientists would even make this remark.
Isn’t science = hypothesis + experiment + collection of data + conclusion?
CCSVI is science = opening clogged veins will remove unwanted toxins + angioplasty procedure + blood flow is improved + patients experience changes in their symptoms + the procedure must help.
4. The “auto-immune” theory no longer holds water. This is just factual. Yes, it is true that an MS person’s immune system turns against itself and destroys myelin in the process. But this theory has never answered the question WHY? Why does the immune system turn against itself? CCSVI answers the question (even though the scientists don’t like the answer). The immune system becomes active because the vein blockage does not allow destructive toxins to leave the brain and spinal cord areas, and therefore the toxins begin to attack those regions (hence the buildup of placque), and then the immune system tries to come to the rescue, but fails by attacking myelin rather than the toxins. As one person so aptly put it, it’s like owning a house without a toilet. Where does all the waste go without a means to flush it out?
5. The proof is in the pudding. The medical community has never had an answer or even a treatment path for those who are secondary-progressive. Again, this made no logical sense. If a medication works on a relapsing-remitting MS person, why wouldn’t it work on secondary-progressive who were formerly RRMS? Once again, CCSVI answers this question. Vein blockage is the initial cause, not allowing the toxins to escape. Over years, placque builds up and causes MS symptoms by loss of myelin and damage to the brain and spinal cord. So, if you use the theory of the doctors, CCSVI wouldn’t work on secondary-progressive people either. Oops. See the video link below that shows the contrary – that CCSVI actually DOES work on secondary-progressive patients:
We are investigating whether Deanna would qualify for further CCSVI treatment. We’ll let you know.